Muscular dystrophy (MD) is a genetic condition where mutations interfere in the production of the proteins needed to form and maintain muscles in the body. There are different types of MD, the most commonly found are Ducchenne, Limb girdle and Becker's muscular dystrophy. Presently, there is no cure for the condition.
Physiotherapy is one of the methods of treatment to improve activities of daily living as well as prolong the lifespan of the individual having muscular dystrophy. I got a chance to volunteer my week in the valley of Solan, Himachal Pradesh at the Indian Association of Muscular Dystrophy.
Photo: Along with two of co-founders Sanjana Goyal and Uma Baldi
The institute was well equipped with land as well as water based rehabilitation therapeutic equipment need for physiotherapy of the MD campers. People all over India came for the rehabilitation based treatment that lasted from 9 am to 5 pm with food breaks in between. It was truly a wonderful experience curated by the founders of the association as well as a delight to share experience with the fellow physiotherapists - Dr Anirudh, Dr Anil, Dr Amandeep, Dr Sunita and Dr Gulam.
There is need for awareness of the condition is needed at the pre-natal stage as well as psychological counselling for the parents and spouses. Hopefully, in the upcoming years there will be more disable friendly and accessible areas developed along with the knowledge in the society.